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Brinsupri experience after 3+ months

MAC & Bronchiectasis | Last Active: 6 hours ago | Replies (292)

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Profile picture for maryjanechilds @maryjanechilds

@Cathln I agree it is very depressing. The Brinsupri has been a big help in reducing the number and severity of exacerbations so I really cannot give it up. I am currently on 25 mg but think I will cut the pills in half and see if that slows the hair loss. I am having some skin issues as well but nothing very severe.

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Replies to "@Cathln I agree it is very depressing. The Brinsupri has been a big help in reducing..."

@maryjanechilds Please consult your pulmonologist or pharmacist before cutting the pills! There is a 10 mg dose that my pulmonologist uses exclusively. When I saw her Monday she said her patients do well at reducing cough and exacerbations with very few side effects, and she will be monitoring further progress via new CT scans at one year.