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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: 12 hours ago | Replies (72)Comment receiving replies
@grownupcf please clarify….are you on Kevzara now?
Replies to "@grownupcf please clarify….are you on Kevzara now?"
@tweetypie13 I started May 18, 2026.
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@tweetypie13 Yes - I started Kevzara on May 18. So I've had 3 doses in total (every other week). One more coming up next week.
Not sure I've seen any improvement, and my rheumatologist feels it's too soon. I did try to back off the prednisone but 13mg seems to be my minimum right now.
Going to try the week after next to dial back 1mg every other day (12mg, 13mg, 12mg, etc.) She said try that for a week or two. Then stick with 12 for a week, until after the next shot.
Initially, she didn't seem to be on the same page - rushing to get me off - and that didn't go well.