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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 hour ago | Replies (6931)

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Profile picture for tessie63 @tessie63

@cheyne I am praying that this works for you. I’m able to combine the seeds together and put them in my cereal. Please keep in touch and tell me if it works. Even if you could only use the black sesame seeds that might help. Best of luck!

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Replies to "@cheyne I am praying that this works for you. I’m able to combine the seeds together..."

@tessie63
Hi,
Sadly, I have been advised not to use the seeds as the stomach is stacking the food and fluid in a state of stasis. The laxatives are stranded in the upper stomach unable to get to where they need to be to work. I get all the pains and noise throughout the system but not reaction you would normally expect loaded with laxatives. So far Dr's don't seem to be getting the message, I'm not constipated, the muscles don't do their job moving the food through the digestive tract and out of the bowel. I'm on a three-day cycle, eat a small amount of easily digestible food the first day, fluids the second day and suppositories late on the third day with some fluid before if possible.
Thankfully dulaglutide has finally left the body but it was not the cause only an enhancer that made me realise I have a big problem anyway. We have little idea what caused the autonomic polyneuropathy and FND but so many health issues have all added their "help" along the way including PBB poisoning in Michigan. Fortunately, not Covid which would add its few cents worth if it could.
Now the body is being starved of vital nutrients I have approximately 1 hour of strength left in the body per day and no stamina before the legs start to tremble and struggle to hold me up. Because of the lack of nutrients, the body is robbing it from anywhere it can find it, muscles mainly. A result of what is going on my glucose levels have started climbing as the body is under stress and releases even more glucose into the system to help where it is needed.
I appreciate the support and suggestions but believe me there is no way around this problem until I can get a new wiring loom or a full body transplant!
Just starting to notice I can't feel the gas pedal anymore so not long before I'll need to stop driving. Meantime all I can do is look on the bright side and keep fighting by whatever means I can.
Cheers