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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: 12 hours ago | Replies (72)Comment receiving replies
@cyndip. Same here, I have managed to come down to 1mg. My weight is still fluctuating though and now my eyes are puffy and the eyelids are drooping . The main issue I am having at the moment is, it is playing havoc with my thyroid. I was under active now I am over active . So I have to wait three months to see what happens.
Rheumatologist I have not seen one at all . I have been on prednisolone for over 2 years . I really can't wait to come off them.
Thank you for sharing your experience , it really does help to know we are not alone .
Replies to "@cyndip. Same here, I have managed to come down to 1mg. My weight is still fluctuating..."
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@brushetta13 thanks for your comments. Congratulations on making it to 1 mg! My weight really fluctuated too but has now managed to even out and I feel more like my old pre-prednisone self. Hope your eye and thyroid issues clear up soon. It will be wonderful to get off this stuff- I was on it for over 2 years too. I am grateful for it giving me my life back when I was first diagnosed with PMR, but I am so ready to be done with it. You are right that it really does help to share experiences with others dealing with the same thing. Best of luck to you - hang in there!