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Any phrase, idea that helped you navigate life with epilepsy?
Epilepsy & Seizures | Last Active: 5 days ago | Replies (48)Comment receiving replies
@jakedduck1
I was 2 when my seizures started I knew epilepsy and was found dead at the bottom of the steps at they automatically said she had a seizure.
There is not a test to say someone had a seizure.not one person was around that can say she had a seizure and fell down the steps.
Know one knows what happens they where guessing.
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@belinda5000
Yes, your absolutely correct. They are making guesses or playing clairevoyant. That's one reason why some patients hide their diagnosis. When someone hears "epilepsy" they automatically think seizure.
I was in an car accident and while in ER a nurse comes in and says "the doctor thinks you had a seizure" even though I told them exactly what happened, which I couldn't have done because of the memory issues the that accompany my seizures. Medical professionals don't seem to care what position they put seizure patients in when they make these inaccurate diagnosis. The first thing that usually happens is that your drivers license is revoked. So I got to pay thousands of dollars to hire an attorney to get it back. All because someone made an assumption that was wrong but if you have epilepsy, get used to it and get geared up for a fight! I've been at the bottom of a staircase too but I did have a seizure. It just makes me mad that professional people are allowed to get away with being wrong and the truth often doesn't even enter in the equation. Doctors and medical professionals have the ability to think, logic and reason but if epilepsy is in the equation logic and reason aren't. At least that has been my experience.
Take care,
Jake