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Glioblastoma brain tumor: Struggling without him

Loss & Grief | Last Active: Jun 24 9:40am | Replies (6)

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@colleenyoung
The last trip to the hospital was only 1 week and I decided to transfer him to hospice once it became obvious the doctors only wanted to use him for research and was in a truly bad place. I had him moved to hospice and 3 days later he passed. It was not only a horrible experience but also a very horrible end. There are just so many unanswered questions, conversations we didn't get to have because of him being non verbal. I have seen so many posts of others who had much better experiences than we did even though we supposedly had one of the best surgeons.

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Replies to "@colleenyoung The last trip to the hospital was only 1 week and I decided to transfer..."

@kjsthljc1 I'm so sorry for your loss, and that you had to go through such a terrible experience with the hospital.

I too lost my husband 5 weeks ago after 56 years of being together. I understand your pain. The struggle every day. I don't know how to bear the ache in my heart. All the memories that come flooding back. The guilt, the feeling that I should have done more for him. The conversations we never had...

I wonder how others manage to bear this pain and continue to survive.

Know that you are not alone. I feel his presence near me, and I know that he is waiting for me, and wants me to carry on the best I can.

Wishing you strength and peace.