@pmrsuzie Hi, I too was surprised there were no pamphlets on PMR in my rheumatologist office. A friend sent me five books purchased, on Amazon, all about PMR and low inflammation diets.
The book I liked best was Polymyalgia Rheumatica, A Guide to Understanding PMR by Belinda Hanson. It’s only 95 pages, and packed with good information in a clear easy to read format.

I knew nothing about PMR when I went to see my rheumatologist for the first time. He only prescribed me a month’s worth of prednisone to completely taper off of in that time. He then wanted to see me in two weeks after that. Ignorantly, I said, “So I could potentially be rid of all of this in a month?” He actually told me it’s possible! Really? I’ll never understand why doctors cannot be more honest and straightforward. I don’t want false hope, I want to deal in reality. He should have told me it’s a very long process for the majority of people. After reading several books about the subject I quickly learned how ridiculous that was. I knew then I was in for a very long journey.

I’m only six months into it and have tapered from 20 mg to 6. When I got to 6, I had to increase to 6.5 because the pain started to come back. I’m back down to six again and holding, doing OK so far. The doctor wanted me to taper a milligram a month. But I can see moving forward, at these lower doses, it is most likely not going to happen. I plan on only tapering by a half a milligram a month and doing the alternating high low tapering you will find on this forum. I will start it beginning of July and will report back how it goes.

Knowledge is power. Best of health to you, and all.