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How do you distinguish between a Bronchiectasis vs NTM flare ?
MAC & Bronchiectasis | Last Active: Jun 25 7:53pm | Replies (15)Comment receiving replies
@blm1007blm1007 Barbara, you have been busy ! I wish it didn’t have to be so difficult . I envy people who live by recognized BE centers & doctors . I hope the new one you are seeing will be a home run!
I have an appt with Dr Jung next month . Another person that lives in my area, and saw Dr McShane , said he was recommended by her when McShane left . This person also told me Dr Jung can send your specimens to NJH, and he’s currently involved with a BE clinical trial . She’s very happy with him.
Baylor has not been accredited yet by the NTM & BE Assoc, so I do plan to ask him about that specifically , with my list of other questions .
I love my current pulmonologist , as a person . But her knowledge of BE appears to be lacking . I was hoping my local doctor & UT Tyler could work together , but I don’t really see that happening too well.
Any other thoughts on your appts with Jung?
Oh to live in Denver !
Replies to "@blm1007blm1007 Barbara, you have been busy ! I wish it didn’t have to be so difficult..."
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@cholash Yes I did see Dr. McShane a couple of times before she left Tyler.
It will take time for Dr. Jung and all to get the Dallas Baylor location to be certified as a Center of Excellence.
More than anything it is the doctor that makes the difference...in terms of their knowledge and interest in treating BE.
Too many doctors in specialties are generalists in their specialty and do not have the time to keep up with all the new information to care for all the types of illnesses their patients have. That is why the need for a pulmonologist that concentrates on BE patients, more so.
Glad you will see Dr. Jung and that they are sending specimens to NJH.
Barbara