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Neuroendocrine Tumors (NETs) | Last Active: Jun 25 4:02pm | Replies (10)

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@rdebeer
The story of your diagnosis is quite typical for NETs/carcinoid patients. Many of us were being tested for something totally unrelated and had no symptoms. This type of cancer often has no symptoms. Fatigue is very common with this cancer.

It is always wise to consult a NET specialist. NET specialists are not in every oncology clinic. At Mayo Clinic, all three locations have NET specialists. If you are interested in an appointment
for a second opinion, here is a link with appointment information: http://mayocl.in/1mtmR63.

If for any reason an appointment at Mayo is not possible, here is a link from the Neuroendocrine Tumor Research Foundation with NET specialists in the U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/

Have you considered obtaining a second opinion?

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Replies to "@rdebeer The story of your diagnosis is quite typical for NETs/carcinoid patients. Many of us were..."

@hopeful33250
Thank you very much for the info. After tomorrow, when I see my Surgeon for his comments, I will likely try to find an Oncologist here in Las Cruces, NM, and then will also likely get the appointment over in Phoenix for the second opinion. Regards, Rick