Replies to @hopeful33250 Greetings hopeful, thanks for your note. No symptoms. My Pulmonologist sent me to get a...

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Neuroendocrine Tumors (NETs) | Last Active: Jun 25 4:02pm | Replies (10)

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@rdebeer

@hopeful33250 Greetings hopeful, thanks for your note.
No symptoms. My Pulmonologist sent me to get a CT Scan of my lungs, since I have COPD from smoking cigarettes for 40 years. Since the CT Scan also captured a view of my Pancreas, the PNET was discovered quite by accident. I have not had any symptoms with either the original Tumor or the newly discovered one that I can think of, except maybe being more tired all the time is related. I have felt that the tiredness is just old age. I typically get 9 hours of sleep each day, but it is never enough. Regards, Rick

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Replies to "@hopeful33250 Greetings hopeful, thanks for your note. No symptoms. My Pulmonologist sent me to get a..."

Teresa, Volunteer Mentor | @hopeful33250 | Jun 23 8:49am

@rdebeer
The story of your diagnosis is quite typical for NETs/carcinoid patients. Many of us were being tested for something totally unrelated and had no symptoms. This type of cancer often has no symptoms. Fatigue is very common with this cancer.

It is always wise to consult a NET specialist. NET specialists are not in every oncology clinic. At Mayo Clinic, all three locations have NET specialists. If you are interested in an appointment
for a second opinion, here is a link with appointment information: http://mayocl.in/1mtmR63.

If for any reason an appointment at Mayo is not possible, here is a link from the Neuroendocrine Tumor Research Foundation with NET specialists in the U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/

Have you considered obtaining a second opinion?

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