Connect
← Return to How long can you be on Xtandi?
Discussion
How long can you be on Xtandi?
Prostate Cancer | Last Active: 5 days ago | Replies (19)Comment receiving replies
I was on Xtandi for 3 months, alongside a 3 month Lupron injection. I stopped taking them both a month ago after the 3 month journey. Tough to say which side effect was from what, but mine weren’t awful. I was definitely a bit tired but got though my days without issue. The biggest side effect for me were the hot flashes. There are worse things but it’s quite annoying. My only real bodily response was that my sling started feeling strange to the touch. I think I lost some hair or microhairs so it felt weird. Like leather and rubber. There wasn’t any pain or discomfort. FYI I’m 54, started the meds Feb 20, stopped late May. RALP on April 20. All in all the side effects were annoying but not debilitating for me.
Replies to "I was on Xtandi for 3 months, alongside a 3 month Lupron injection. I stopped taking..."
Connect
@mark10517ny Maybe a younger body just tolerates hormone therapy better. 🤷
Like you, I was in my mid-50s when I started on ADT + an ARSI (Apalutamide in my case).
I read posts about ADT and ARSI (like Xtandi or Erleada) being unbearable, even for people who are on them for just a few months, and it's like they're writing about completely different meds.
Like you, I've experienced mild fatigue, body hair loss, and thermal dysregulation (like hot flushes), and I can toss in gynocomastia. But I've lived with hormone therapy for nearly five years, and for me, the worst thing I'd call it is "occasionally annoying".
OTOH, I had very bad experiences with steroids and opioids in hospital post-surgery in 2021, and couldn't get off them fast enough (steroids gave me temporary diabetes and severe insomnia, while opioid-based painkillers gave me weird, vivid dreams that made me afraid to close my eyes). They don't seem to bother most other people.