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@cholash I have gone to Tyler several times since 2024 and Dallas Baylor downtown at least twice. I had/have been trying to find the right fit for me in terms of care and location since 2023...who to see and where. That said...in order to figure it all out and what is best I have seen eight pulmonologist since 2023. Sound nuts, eight, but it is so important to find the right doctor and hopefully one close to home.

The one thing about Tyler is that the lab can detail the specific type of MAC infection one has. I do not know if Dallas sends the sputum for testing to National Jewish or Tyler and/or if they are able to detail all that NJ or Tyler does in their labs..... about the specific type of infection. You can continue sending sputum for testing to Tyler if you see the pulmonologist at least once a year.
The OU Medical Center Pulmonologist(s) I have seen send my sputum to NJ for final testing.
I presently am seeing, here in OKC, a new pulmonologist due to another pulmonologist in OKC referring me to this new pulmonologist at OU Medical Center OKC. The new pulmonologist is head of the Pulmonology Department and has so far referred me to a Speech Therapist and an Infectious Disease Doctor. Previously with all the pulmonologists I have seen this is the first Pulmonologist that has referred me to a Speech Therapist or an ID doctor. That I am grateful for.
The Speech Therapist is helping me with various types of exercises that help with the lungs/breathing and also tongue muscle strengthening.
I have seen Dr. Jung at Baylor, Dallas and thought he is dedicated to his BE patients. Who do you have an appointment with in Baylor, Dallas?
Barbara

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Replies to "@cholash I have gone to Tyler several times since 2024 and Dallas Baylor downtown at least..."

@blm1007blm1007 Barbara, you have been busy ! I wish it didn’t have to be so difficult . I envy people who live by recognized BE centers & doctors . I hope the new one you are seeing will be a home run!
I have an appt with Dr Jung next month . Another person that lives in my area, and saw Dr McShane , said he was recommended by her when McShane left . This person also told me Dr Jung can send your specimens to NJH, and he’s currently involved with a BE clinical trial . She’s very happy with him.
Baylor has not been accredited yet by the NTM & BE Assoc, so I do plan to ask him about that specifically , with my list of other questions .
I love my current pulmonologist , as a person . But her knowledge of BE appears to be lacking . I was hoping my local doctor & UT Tyler could work together , but I don’t really see that happening too well.
Any other thoughts on your appts with Jung?
Oh to live in Denver !