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Tell us how you "Live Life Fully" with Bronchiectasis and MAC
MAC & Bronchiectasis | Last Active: Jun 27 7:01pm | Replies (55)Comment receiving replies
I am just reading these comments after being diagnosed with BE in 2023 and MAC on 6/8/26 after being sick with all the symptoms for 2 months. I retired ( as planned) on 6/18 and grateful this disease did not make me change that timeline. I see many people not having to do the big 3 ( which have me freaked out) but my pulmonologist didn’t suggest anything but the meds. I do trust him and he has been my doctor since 2012. Thank you
Replies to "I am just reading these comments after being diagnosed with BE in 2023 and MAC on..."
@galec I was diagnosed with MAC on 5/22/26 and currently taking the 3 meds. I have met with my lung doctor since the diagnosis but have appointment on 6/24. Been on Brinsupri since 11/22/25 but experiencing major hair loss. Stopped this medication on 6/20/26. I'll talk with the doctor tomorrow re this decision. The Brinsupri definitely cut down on my mucous. Anyone else experience hair loss and suggestions for new growth.
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@galec What you have said happens to many of us who do not realize our doctor is not up to date on all that should be done to help ourselves with BE.
Please review many of the threads on this Mayo to understand all that I am sure you have on your mind about the diagnosis and MAC.
I went to National Jewish Hospital/Clinic because my pulmonologist did not appear to be knowledgeable and did not suggest nebulizing or air way clearance methods when it was confirmed I had BE.
Have you researched air way clearance methods for clearing bronchiectasis mucus, on the internet?
Hopefully others will come to your post and give you more information.
Barbara