John, guess I'll introduce myself too. I have had slowly evolving sensory ganglionopathy going back to 2016, but didn't have a diagnosis until 2024, as symptoms became more evident. Progression has been glacial, but is now having a large impact on my quality of life. Pathogenesis is impossible to determine; I have Sjogren's but no antibodies, a "probable paraneoplastic" score of 7, but again no antibodies (cancer is an adenocarcinoma that wasn't identified until March 2025), and from 2012-2014 I had undiagnosed Lyme disease, so I've got the trifecta (oddly, I've never had COVID, but I'm not complaining :-). Neuropathic symptoms started on the tips of my fingers and toes 6-7 years ago, but now are everywhere I have skin, including face, lips, and tongue (even my front teeth feel numb). Currently on IVIg and Rituxan, but the slow progression continues. Been on mycophenolate and methotrexate without discernible effect. I think I've been through the entire pharmacopeia for the pain, but found that anything that releases dopamine seems to work best (exercise, chocolate, laughing, socialization, warm baths, etc.). Lots of related issues, including dysautonomia and exercise resistance, hypertension, etc. Not sure how to find my way around here, but will look at the link you provided above. Ron