← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @loribeyerlein, Welcome to Mayo Connect. My bone marrow transplant was 7 years ago, requiring my husband (caregiver) and myself, to relocate to Rochester for 100+ days. We stayed at the Marriott Residence Inn which is two blocks from Mayo. It’s connected via the tunnel system which made it easy to go back and forth to clinic daily without parking issues.

We had leased a 2 bedroom/2 bath unit with full kitchen. (If you stay any place longer than 30 days. See if you can lease the room. That way you may avoid county room tax). I don’t remember what it cost per day but I do know room prices shot up over the past few years. (You may also check with your insurance. Many companies pay a stipend for lodging while being treated…ours wouldn’t because I opted to go out of state for treatment).

Each of the units at the Res Inn has a kitchen. All have a Full-size refrigerator, at least a cook top if not a complete range, microwave, dishwasher and disposal. Makes it easy to set up a home away from home.

But there are other lodging options in Rochester besides hotels. There are duplexes, apartments, condos, Air BNBs. But many of the hotels do have kitchens or mini kitchens to allow for cooking. The Gift of Life Transplant house is another option if you’re having a solid organ or bone marrow transplant. That wouldn’t have worked well for me or my husband. We’re more private, so the independent living worked better for us.

Here is a conversation that has an extensive list of long term lodging in Rochester. Hopefully you’ll find it helpful! https://connect.mayoclinic.org/comment/1242265/

Mayo Clinic has a free Concierge service which can aid in finding suitable lodging. Here is their contact info:
Concierge services
https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services
By phone 7 a.m. to 6 p.m., Monday-Friday: 507-538-8438
Email: concierge@mayo.edu

Since you’re new to Connect would you mind sharing a little more about yourself? Will you be having a bone marrow or stem cell transplant? What is your underlying condition that has brought you to needing the transplant?

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Replies to "Hi @loribeyerlein, Welcome to Mayo Connect. My bone marrow transplant was 7 years ago, requiring my..."

@loribmt thank you for the information , much appreciated . I am 65 yo and I got diagnosed with CMML myelodysplastic-type
CMML (MD-CMML)
A couple of months ago . I live in eugene Oregon and in 2 1/2 years no one here or even in portland could diagnose me . I had skin sores ( bumps ) I bled easily and bruised easily . My dermatologist basically saved my life by encouraging me to go to the Mayo Clinic ( he knew a colleague there and got me an appt ) . He said he could not diagnose me .
I went to Mayo for a week and after two weeks they called me to get a bone marrow biopsy because my cells looked odd shaped + within a couple of days I was diagnosed. A few weeks after that I had my follow up over phone with Mayo hematologist and they told me because of my type of mutations it raised it to urgent and I needed to have a bone marrow transplant . Quite shocking at the time because my drs here were saying it could be easily managed for years . I am going to have the transplant at Mayo the dr is shooting for beginning of Sept but they’re still in the process of finding a donor . My son can be back up , which is a relief .
My husband is still working so I’ll have a bunch of family -+ friends coming in to be caregivers too .
I just want to find a hotel backup in case I have to move out of the care house .
Thank you for the information