@ln100 After your Whipple procedure, were you evaluated for Exocrine Pancreas Insufficiency (EPI) by having a fecal elastase-1 test? The GI symptoms you describe are classic for EPI. If you were prescribed a pancrealipase such as Creon or Zenpep. The dosage will need to be optimized based on the content of fats, proteins and carbohydrates. There is an online dosing calculator at pert calculator.org. Optimizing my PERT dosage was the game changer for me. It resolved the GI issues and normal function has been achieved.
If you eat high fiber vegetables and legumes, they are complex carbohydrates that pancrealipase does not break down. To eat high fiber foods will require the enzyme alpha-d-galacrosidase which is the OTC product Beano. A capsule taken with these foods will digest them without the formation of gas and cramping.
Some patients develop sequelae after the surgery. Whipple such as lactose intolerance, gluten sensitivity, Small Intestine Bacterial Overgrowth (SIBO), IBD/IBS, colitis, Crohn’s disease and others. A consult with a GI specialist who will do a diagnostic workup can determine what pathology my be causing your symptoms.
Sabrina Oliver R.D., at Columbia-Presbyterian Medical Center is part of the pancreas program. She is the Registered Dietitin with the credential C.S.O. (Certification Specialist Oncology. She will be helpful is symptoms management and recommending a GI specialist at Columbia to do a diagnostic workup.
@stageivsurvivor hi. Thanks for your help. I had work ups of every kind by my GI doctor. And I talk to Sabrina at Columbia every few months. I did use Gasx but it never worked. I’ve tried everything for everything. Except Beano which I will try. I don’t have any of those other things. I had test upon test and a recent cat scan. I’m actually going for another consult with a new gi on August 3. I figured it can’t hurt. The only vegetables I eat are well cooked string beans, asparagus, zucchini which I started peeling and mushrooms and fruit only applesauce, diced peaches and I started eating grapes. No others and no salad. I’m on a very restricted diet. Except I am eating chocolate every few days. I gotta live a little. But lately has been terrible. Not to be gross but I am constipated, have diarrhea, gas, cramps all the time and every time I eat its even worse. I tried that Creon dosing thing. I don’t understand it. I take 2 to 3- 36,000 unit capsules with “snacks” and 4 to 5 with meals. I was bad about the Creon before but for the past 10 days I eat nothing without it. One problem I do have is eating too much and too fast at one time. A bad habit. I’m trying to fix that too. But I feel like the doctors are useless. I feel like I’m going backwards.