Hi,
Recently I have trialed dulaglutide for T2 diabetics which has enhanced the neurologicl problems I had managed to ignore for what turns out as years. I have autonomic polyneuropathy, FND, IBS and diabetes with rampant high blood pressure. In trialing dulaglutide it has locked up my digestive system and bowel leving me in serious trouble. I have stopped taking it, now 4 weeks ago and have another week of this before it is out of my body. It is becoming clear the digestive problems I have are the tip of the iceberg. I'm restricted in how much I eat or drink the volume being my limitations. Half a cup of tea immediately locks up the digestion taking over 6 hours to progress through the system. Solid food is impossible for the moment.
I'm just now starting to realise how many years this has been going on and I have just ignored it as life. It seems to have invaded the entire body to some degree or other. With my diabetes being untreatable due to the damage that has occured to my nerves system I react to every known medication. I'm classed as super sensitive to medication. I'm now facing likely starvation which is well on it's way or death through diabetic coma. I get to choose, Murphy's law. I have managed to overcome many problems associated with neuropathy but facing no cure and no treatment is weighting heavily on the mind. Don't get me wrong, I'm not concerned about death. I just wish it would get a move on.
The glazed over look and the shrug of the shoulders from so called specialist becomes annoying to say the least. That is the ones that have any idea of what I have to deal with daily. Usually I'm having to educate them and then I don't think they get the full grasp of the severity I'm dealing with. I shudder to think I could be past halfway with the neuropathy but it is shaping up to be the reality. Fortunately the daily pain is not a problem having lived with it for so long it is just there and I pay it no mind, luckily I have a very high pain tolerance. I feel the strength and stamina slipping away from me. Regardless of the dulaglutide it should not interfering with the stomach by now which is looking like I now can consider the digestive lock up as pemanent, unless I don't eat. At the rate the medical fraterity moves I likely won't need their help when they get around to it. I'm sitting here wondering what my next choice will be, not that there are many, two to be precise, both lead to the same place.
I'm not even sure why I'm typing this now as I'm incurable and untreatable, so expect nothing from anybody that could help. The vain hope is someone else out there is dealing with this incidious disease themselves who would compare notes. Despite knowing it is futile there is still hope something might come to light to help anytime.
Cheers