← Return to Permanent SIBO due to removal of ileocecal valve

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pknw (@pknw)

Permanent SIBO due to removal of ileocecal valve

Digestive Health | Last Active: Nov 3 7:27am | Replies (160)

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@rachel_b

Hi @smitcore ! I'm really sorry to hear you're having similar issues — it's so challenging! Did the removal of adhesions help you at all? Just curious.

As far as SIBO goes, I've still been working on fixing mine since posting on here a few years ago. It's definitely been a struggle, and none of the drugs worked for me unfortunately — pharmaceutical or herbal. Did you mean that you already tried Xifaxan and it didn't work, or you're still hoping to try it?

Something that has worked pretty well for me lately is actually a Keto + Low FODMAP diet. My reasoning was that by eating a high-fat low-carb diet, I'm barely giving the bacteria any carbs feed on. And the small amount of carbs I AM giving them are low FODMAP, so there isn't much to ferment. I'm not a scientist or anything and I don't know if this method would be recommended for everyone, but so far it's helped me a lot — more than any other diet or drug. I'd definitely work on it with a dietitian if you're going to try it, though, to make sure you're doing it safely.

Also, focusing a lot on motility — just keeping things moving so that colon bacteria can't back up into the small bowel — has been helpful. My large intestine doesn't move that well ever since my surgery, which I think exacerbates overgrowth in the small bowel without the valve there since it's easy for bacteria to cross over if there's a lot of backed up stool. I actually went to Mayo a few months ago and saw a GI doc there, and although they didn't have a lot of ideas for SIBO, their main suggestion was focusing on motility and really keeping things flushed out. But again, your symptoms might be different, so I'm not sure.

Again, take all of my advice with a grain of salt and definitely run it by a professional, but these are just things that have been working for me lately since I had no luck with drugs.

I'd also recommend a book called "The Bloated Belly Whisperer" that I got recently. Lots of good info in there on a wide range of digestive issues including SIBO.

And, one last thing — two women recently started a podcast, who both had similar surgeries as us: https://www.girlswithgutspodcast.com/ Both of them have had recurrent issues ever since so I'm hoping their podcast might cover some useful solutions once they start putting up more content 🙂

Hope this helps!

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Replies to "Hi @smitcore ! I'm really sorry to hear you're having similar issues -- it's so challenging!..."

Was able to convince surgeon to perform laparoscopic, first he suggested full open. He did an amazing job and got all adhesions out laparoscopically… still recovering from that as it was done last week. Sore but each day I'm more active.

I've tried Xifaxan a couple times, but only by itself or with herbs. Both times I felt better while on it, but not 100%. Still was a relief for the period, but only lasted about a week after and then all bloating back. I here there is concern with taking it 100% of the time due to bacteria becoming resistant.

I'm hopeful that removing adhesions improves mobility and the cramping feelings I was having (along with the occasional ER visit due to small bowel obstruction from adhesions), but doubtful it'll resolve the bacteria migrating from large bowel to small… maybe a valve replacement will become an option in the future.

Thanks for the insight and links. I'll check it out.