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What rehab to do after 6 months of Orgovyx and 38 sessions IMRT
Prostate Cancer | Last Active: 6 days ago | Replies (32)Comment receiving replies
@jeffmarc I will get back to doing the repetition with the weights. I was only on it for 6 months and it has affected me. I am also aware that there is a good chance of my cancer reappearing and I would be placed back on Orgovyx and I need to do better.
The sleep is a major problem for me and started before my prostatectomy. I had multiple infections in my seminal vessels and the pain became chronic. It also made me feel like I have a uti with pain in the penal area making me feel like I have to go all the time. The most painful part disappeared and I was extremely happy when they removed my prostate and seminal vessels but the feeling I had to go did not go away and the sensing of pressure of my sphincter muscles and any tension is magnified and the only time it is not when I am going.
Since I feel I have to go all the time I am constantly getting up to go at night If I wait to long or if something like seeing a bathroom I just spasm.
I went onto a catheter for 4 months and was still waking feeling I had to go but told myself I had a catheter and finally I started to sleep through the night. The catheter was a lot of work and limited me from doing things. I got several infections and did not want to get a chronic infection so I went back to diapers. I slept well because if I woke up I accepted the diaper and went back to sleep. Sometimes I made it through the night and sometimes I didn’t but the sleep was blissful.
But then my mind went back to trying stay dry and getting up. I watch the clock staying awake and getting up. I am at a 52% sleep deficit and with the Orgovyx and radiation I can barely function. last night I got up eleven times and could not wait to get the night over watching the clock. If I can not get by the mindset of getting up at night I will have to go back to the catheter. Even being over the radiation and Orgovyx the sleep is needed. It is now my top priority. What drug are you taking for sleep, I have tried several with no success. I just need to get my mind back to sleeping through the night.
Thanks for all your help you have given me and to others. You are an inspiration to me. Best wishes always.
Replies to "@jeffmarc I will get back to doing the repetition with the weights. I was only on..."
I tried many herbal supplements for sleep and they help if I am not very stressed but when I need extra help Benadryl (6 hour) helps , or ZQuil and I also discovered that CBD and THC gummise help 100 % ( and I use half the recommended dose !!! , go slowly if you never used weed, I did not ever try it before).
I tried one med. that doctor prescribed and I thought I would die even though I took half the pill - it is called Tramadol - never again I will ask a doctor for sleep aid 😡. If you do go to doctor ask for mild sedative, NOT this crap that is actually very old anti depressant - just horrible drug and lasts for at least 24 or more hours. I have no idea what is wrong with doctors in general.
Bouncing moves - absolutely necessary since those use "gravity signals" sent to bones to grow stronger. I have no idea why nobody mentions that in their presentations (actually that Australian guy who sells app. did - he suggested bunny jumps and step). Many studies are done proving that bounce gives bones signal to grow. If you have sensitive knees or hips than simple "up up, down down" on one step will do. Or small trampoline too. There is no need to do whole aerobic routine on a step - just gong up and down that platform or if you have steps in the garden or in the home use the first step as a prop. Now, if you have stamina step aerobic part would give you both - bone exercises and cardio and lover body muscle exercises.
My husband does weight also , every day for 30 min and uses you-tube series for prostate cancer patients. Exercises are done at home. He showed them to UCSF nutritionist and their PT person and both confirmed that they are exactly what he needs to do. He was told to challenge muscles with heavier weights as soon as repetition becomes "comfortable". One has to do given number of reps till one just can not do single one more.
Wishing you the best always 💗
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@pamperme
I don’t take anything for sleep. I don’t need it.
I take Myrbetriq To stop urgency at night, Also, during the day, I suppose. I used to get up at least three times at night now I don’t get up at all, Well, maybe once a month.
Gemtesa is supposed to do the same thing.
Both of them say they can reduce incontinence, at least a little.
Stopping that urge seems to also stop the waking when you get the urge.
I’m surprised your doctors have not tried to put you on something to stop urgency. Is there a problem with your bladder that is causing this? Have you had them check your bladder to make sure it’s empty after you pee? Have they determined what is actually causing this urgency issue?