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Prednisone for life?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 21 9:45pm | Replies (18)

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@loriesco

I'm a man --- I wish they would stop adding another diagnosis. I have more diagnoses than I need and acquiring more isn't good either. I wish I would be under diagnosed. I was recently diagnosed with something that I would rather not know that I have.

As for gout, that was another recent diagnosis. I passed a very painful kidney stone that was composed of 85% uric acid. My blood uric acid level was also very high. I still wasn't diagnosed with gout.

God only knows how long I had gout because I had enough pain without gout. My rheumatologist finally said maybe gout was contributing to my pain even though I denied ever having a flare of gout.

My rheumatologist looked at my deformed joints in both of my big toes. I called them extra large bunions and said my father's toes looked the same. I thought that I inherited his toes because he wasn't diagnosed with gout. He only had "sensitive feet."

It took maybe a minute to do an ultrasound of my big toes with a little machine that wasn't used very often. There were a couple of doctors trying to figure out how the machine worked and how to use it. Then a more experienced doctor did some training to the other doctors and said I definitely had gout by quickly doing the ultrasound. He said there was so much trophi (uric acid crystal deposits) in the joints of my big toes it was surprising that I never had a gout flare.

I said maybe I had a gout flare but I didn't know I had gout because I wasn't ever diagnosed.

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Replies to "@loriesco I'm a man --- I wish they would stop adding another diagnosis. I have more..."

@dadcue it’s really hard for me to get rid of my anger around not being formally diagnosed with gout after 30 years until recently. I went to top drawer arthritis doctors many over many great medical institutions like UCSD and the VA Naval hospital in Balboa Park, I even had gout flares 25 years ago and had to go to the hospital for them. Then they were completely ignored my history with my father gout was ignored. My continued inflammatory pain was ignored. I demanded to be tested. They kept testing me for rheumatoid arthritis and when that came up negative every five years they would not dig deeper. I am very very angry. It wasn’t until I tried the tart cherry capsules by ZAZZEE that within 24 hours all my pain disappeared after 30 years. Not only that but my interstitial so us and quite a few other things got better. There’s something else you should know that there’s two kinds of gout. One is the traditional gout which is stimulated by high uric acid levels in your body ergo your kidney problems and your stones, and there is something called pseudo gout. I thought that was just something that mimicked gout because the stupid doctors seeing me at the time didn’t tell me that it was actually something. I honestly don’t think they knew. But it is something different. It’s caused by calcium deposits instead of uric acid deposits and there’s nothing that can be done for it unlike traditional gout, which is helped by a low purine diet and medication. The pseudo, gout, flares can only be eased by things like Tylenol and painkillers. If you’ve done the testing and you have high uric acid, I think you can rest assured that you have regular traditional gout. I think that is better than having the other kind of gout. After 30 years, the knots in my fingers and the swelling have stopped progressing.!!! that is nice. I am very content on the allopurinol medication. And if my joints start to get sore, I can take an extra pill because I’m on the lowest level dose. Yes my medical history at Ucsd is like eight pages long of diagnosis sees and problems. I used to bug them about removing some of them or hiding them but now I just leave them because if I were to go to the hospital, somebody can see all the things that are there and better diagnose me with whatever I might be currently experiencing.
Natural remedies work great for relieving, gout and avoiding flares for 25 years I make a joint juice of tart, black cherry Noonan juice, apple cider vinegar, and lemon juice maybe the whole thing totals about 6 ounces Then I add about 24 ounces of water or 7-Up something clear and I drink as much as I can over an hour or two and I’ve never had a flare since I started drinking my joint juice. A low purine diet is the key. Even if you were on medication if I were to eat meat, beer, mushrooms, all in one meal I would start bringing on a flare. I am anemic so it’s hard to get that need for red meat satiated with trying to be on a low purine diet at the same time. That’s how I know. I’m getting older because it’s harder to keep imbalance. I’m glad you found out.
I think you should ask them to put you on the allopurinol. My doctor was reluctant because you can get extra pain as the uric acid gets stumped in your system when you first start taking the pills. I had no pain no extra pain. And it was really clear I needed to be on the medication so my uric acid level stays exactly at Center so I don’t create any kidney or gallstones or any other kind of stones. High uric acid runs in my family family obviously because a lot of different members had gout. And if they won’t, you can still take the tart cherry capsules and those are amazing. They’re only like 10 or $15 for like 90 days on Amazon and it comes right to your door.!! let me know if you need the exact link. I think it’s like 10,000 :1