← Return to Kevzara (sarilumab) to treat PMR

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Kevzara (sarilumab) to treat PMR

Polymyalgia Rheumatica (PMR) | Last Active: 58 minutes ago | Replies (205)
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Profile picture for laurelfagan @laurelfagan

Thanks for the information. Getting in remission on this disease is everyone’s dilemma.
I am going to just extend my Kevzara by one week each injection. I have been on once a month now for five months so this time extend to 5 weeks, then six weeks etc. I am hoping my blood work also improves with the extension.
I have had 18 injections since last August! It has been a miracle drug except for my WBC lowering. Feeling great.

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Replies to "Thanks for the information. Getting in remission on this disease is everyone’s dilemma. I am going..."
Mike | @dadcue | 20 hours ago

@laurelfagan

I do a monthly infusion of Actemra currently. I used to do the injections, I could only go 7 weeks between injections when my pain and my inflammation markers increased.

The reason I'm doing monthly infusions of Actema is because I can go 2 months between infusions if I need to in order to facilitate a surgery. I don't want to do the surgery and pain is the "deciding factor." The surgeon said I would need to be off Actemra for a month before surgery and a month after surgery. However, as long as I do a monthly Actemra infusion, I don't have enough pain to warrant a major surgery on my spine.

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