← Return to Permanent SIBO due to removal of ileocecal valve

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Permanent SIBO due to removal of ileocecal valve

Digestive Health | Last Active: Apr 2 6:54am | Replies (191)

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@rachel_b

@bethy1962 I totally feel for you! I'm glad you joined the forum - the people here have been super helpful to me (I had the same surgery as you when I was 24). Re: elimination diets - have you done them under the guidance of a registered GI dietitian? I'm just wondering, because I tried them for a long time too without success, but when I tried the low FODMAP diet again recently with a super knowledgeable dietitian, there was a ton of stuff I realized I was doing wrong. Once I started doing it the right way, I found that it did help (it's not perfect, but symptoms are still better for me than when I'm not following it). The multitude of resources online can be really confusing, contradictory and sometimes wrong - so I'd definitely recommend trying diet manipulation under the guidance of a good dietitian if you haven't already. I learned so much from mine! Best of luck 🙂

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Replies to "@bethy1962 I totally feel for you! I'm glad you joined the forum - the people here..."

Hello,

Thank you for your kind response. The ironic part of this journey is that I am a Registered Dietitian. I have tried the low fodmap
Elimination with a coach. I also eat pretty clean.
It helped somewhat, but still have the afterlunch cramping. I am willing to revisit the diet with a GI dietitian. I just despise the thought of restricting at this stage in my life. I guess I am searching for a magic pill that can ease my anxiety, stress and pain with food. I have gained some weight, I exercise, and feel good up until 2pm. (After lunch I experience the cramping).
I also experiment with CBD and Medical Marijuana. Has helped somewhat, but can “feel a little spacey at times. I appreciate all of your feedback, thank you.