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Polymyalgia Rheumatica (PMR) | Last Active: Jun 21 9:45pm | Replies (18)
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Replies to "I ended up with undiagnosed gout for 30 years. I had inflammatory pain that immobilized me..."
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@loriesco
I'm a man --- I wish they would stop adding another diagnosis. I have more diagnoses than I need and acquiring more isn't good either. I wish I would be under diagnosed. I was recently diagnosed with something that I would rather not know that I have.
As for gout, that was another recent diagnosis. I passed a very painful kidney stone that was composed of 85% uric acid. My blood uric acid level was also very high. I still wasn't diagnosed with gout.
God only knows how long I had gout because I had enough pain without gout. My rheumatologist finally said maybe gout was contributing to my pain even though I denied ever having a flare of gout.
My rheumatologist looked at my deformed joints in both of my big toes. I called them extra large bunions and said my father's toes looked the same. I thought that I inherited his toes because he wasn't diagnosed with gout. He only had "sensitive feet."
It took maybe a minute to do an ultrasound of my big toes with a little machine that wasn't used very often. There were a couple of doctors trying to figure out how the machine worked and how to use it. Then a more experienced doctor did some training to the other doctors and said I definitely had gout by quickly doing the ultrasound. He said there was so much trophi (uric acid crystal deposits) in the joints of my big toes it was surprising that I never had a gout flare.
I said maybe I had a gout flare but I didn't know I had gout because I wasn't ever diagnosed.