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Prednisone for life?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 21 9:45pm | Replies (18)

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I ended up with undiagnosed gout for 30 years. I had inflammatory pain that immobilized me for 30 years. The doctors would look at the x-rays and not looked past the osteoarthritis. I am very thankful that I limited my prednisone use because it’s really bad for us. It is OK for a crisis or flair intervention, but not for regular use. My personal opinion is that the doctor is being lazy if they stick you on prednisone and say that that’s all there is for the rest of your life without trying to work with you to eliminate the cause of your inflammatory pain. It was a fluke that I tried. ZAZZEE tart cherry capsules upon recommendation of someone from this site. overnight it resolved 30 years of inflammatory pain! I spoke to my doctor she gave me a uric acid test(why didn’t anybody do that before I don’t know maybe I wouldn’t have registered) but I was definitely high but inside the boundary so she didn’t want to do anything. I asked to be put on the medicine because my dad had gout and I know it’s inherited. My next lab went perfectly normal and it fixed a gazillion things that were going wrong with my body, so don’t give up and ask those questions for things you think are harmful to your body. I hate it that doctors don’t have the time for us anymore and that women are incredibly under diagnosed.

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Replies to "I ended up with undiagnosed gout for 30 years. I had inflammatory pain that immobilized me..."

@loriesco

I'm a man --- I wish they would stop adding another diagnosis. I have more diagnoses than I need and acquiring more isn't good either. I wish I would be under diagnosed. I was recently diagnosed with something that I would rather not know that I have.

As for gout, that was another recent diagnosis. I passed a very painful kidney stone that was composed of 85% uric acid. My blood uric acid level was also very high. I still wasn't diagnosed with gout.

God only knows how long I had gout because I had enough pain without gout. My rheumatologist finally said maybe gout was contributing to my pain even though I denied ever having a flare of gout.

My rheumatologist looked at my deformed joints in both of my big toes. I called them extra large bunions and said my father's toes looked the same. I thought that I inherited his toes because he wasn't diagnosed with gout. He only had "sensitive feet."

It took maybe a minute to do an ultrasound of my big toes with a little machine that wasn't used very often. There were a couple of doctors trying to figure out how the machine worked and how to use it. Then a more experienced doctor did some training to the other doctors and said I definitely had gout by quickly doing the ultrasound. He said there was so much trophi (uric acid crystal deposits) in the joints of my big toes it was surprising that I never had a gout flare.

I said maybe I had a gout flare but I didn't know I had gout because I wasn't ever diagnosed.