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← Return to Permanent SIBO due to removal of ileocecal valve
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Permanent SIBO due to removal of ileocecal valve
Digestive Health | Last Active: Apr 2 6:54am | Replies (191)Comment receiving replies
Hello,
I am new to this group. Back in Oct. 2015, I had an emergency surgery due to a volvulus, which resulted in the removal of the ileocecal valve, appendix, small amount of small intestine removed and 2 ft. of the large intestine. I have been on a healing journey with many ups and downs. It is good to know that I am not alone. I have tried elimination diets, but have found that most food affects me the same . I take dicyclomine liquid 3 times a day, with some relief. I realize SIBO is an issue for us, however, I was diagnosed as having borderline SIBO 2 yrs. ago. I was wondering if you had any suggestions for using a different medicine that could help with the cramping and pain. I wish you well, and if you have any good advise , I would welcome it. Thank you! Beth
Replies to "Hello, I am new to this group. Back in Oct. 2015, I had an emergency surgery..."
@bethy1962 I totally feel for you! I'm glad you joined the forum - the people here have been super helpful to me (I had the same surgery as you when I was 24). Re: elimination diets - have you done them under the guidance of a registered GI dietitian? I'm just wondering, because I tried them for a long time too without success, but when I tried the low FODMAP diet again recently with a super knowledgeable dietitian, there was a ton of stuff I realized I was doing wrong. Once I started doing it the right way, I found that it did help (it's not perfect, but symptoms are still better for me than when I'm not following it). The multitude of resources online can be really confusing, contradictory and sometimes wrong - so I'd definitely recommend trying diet manipulation under the guidance of a good dietitian if you haven't already. I learned so much from mine! Best of luck 🙂
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@bethy1962 oh, I feel your pain! If you read up through the posts, you can read my story after my right hemicolectomy. I have chronic SIBO and take Xifaxan very day, which has been a God send. Seeing a registered dietician was a huge help also. Food is a challenge even after 2 1/2 years. Best of luck. You aren't alone!