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What rehab to do after 6 months of Orgovyx and 38 sessions IMRT
Prostate Cancer | Last Active: Jun 21 9:31am | Replies (32)Comment receiving replies
@pamperme
ADT deteriorated my muscles to the point that I couldn’t get off the floor without pulling myself up on something. I didn’t really realize how much it damaged muscles.
With some exercise, I am stuck doing things with much lighter weights than I thought I would be able to handle. As @heavyphil mentions however, Doing as many reps as you can with lighter weights, until you can’t do another one, really does build those muscles. Over time you can move up to heavier weights. Getting in there and doing it early, can prevent the loss of muscles that are going to happen, if you don’t do the exercising.
I’ve heard many people talk about the sleep problems. Are you making sure not to sleep during the day so that you are tired at night? I don’t recall ever having a sleep problem with ADT, But for a few years, I would wake up multiple times feeling I had to go pee and I knew I didn’t. Fortunately, taking the right drug fixed that. I don’t go to sleep until midnight and wake up about 6:30, That assures that I’m tired and I don’t usually wake up In the middle of the night, It happens occasionally, but I go right back to sleep. Not sure this really helps but figured I’d bring up things that work for me.
Replies to "@pamperme ADT deteriorated my muscles to the point that I couldn’t get off the floor without..."
@jeffmarc The fortitude you show being on adt for such a long time and working back from the muscle loss gives me the drive to better handle adt in the future and be more prepared for it. I know I will have to build up. Your resolve to handle things and help others is amazing to me. There is so much I learn from your post, thanks again and best wishes.
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@jeffmarc I will get back to doing the repetition with the weights. I was only on it for 6 months and it has affected me. I am also aware that there is a good chance of my cancer reappearing and I would be placed back on Orgovyx and I need to do better.
The sleep is a major problem for me and started before my prostatectomy. I had multiple infections in my seminal vessels and the pain became chronic. It also made me feel like I have a uti with pain in the penal area making me feel like I have to go all the time. The most painful part disappeared and I was extremely happy when they removed my prostate and seminal vessels but the feeling I had to go did not go away and the sensing of pressure of my sphincter muscles and any tension is magnified and the only time it is not when I am going.
Since I feel I have to go all the time I am constantly getting up to go at night If I wait to long or if something like seeing a bathroom I just spasm.
I went onto a catheter for 4 months and was still waking feeling I had to go but told myself I had a catheter and finally I started to sleep through the night. The catheter was a lot of work and limited me from doing things. I got several infections and did not want to get a chronic infection so I went back to diapers. I slept well because if I woke up I accepted the diaper and went back to sleep. Sometimes I made it through the night and sometimes I didn’t but the sleep was blissful.
But then my mind went back to trying stay dry and getting up. I watch the clock staying awake and getting up. I am at a 52% sleep deficit and with the Orgovyx and radiation I can barely function. last night I got up eleven times and could not wait to get the night over watching the clock. If I can not get by the mindset of getting up at night I will have to go back to the catheter. Even being over the radiation and Orgovyx the sleep is needed. It is now my top priority. What drug are you taking for sleep, I have tried several with no success. I just need to get my mind back to sleeping through the night.
Thanks for all your help you have given me and to others. You are an inspiration to me. Best wishes always.