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Brinsupri experience after 3+ months
MAC & Bronchiectasis | Last Active: 5 hours ago | Replies (293)Comment receiving replies
I am starting my 5th month and thinking if anything I feel worse have tightness in chest when I wake up at night so much so that I use oxygen for a while until my breathing calms down. Have a few side effects skin is very sensitive burses easy and if I hit it hard against something it will break and bleed. Also, hair seems to be thinning and of course coughing a lot so I too do not like to go out in public. They say wait until more than 6 months to see improvement, but I expiated some by now.
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@char1234 I have been on Brinsupri 6 months and have hair loss, my skin tears easily even if I slightly bump something, several spots on my legs and going to dermatologist this week, bruising on my legs which I attributed to the compression hose, doctor said no and I now feel this is caused by the medication. Stopped the compression hose but still have bruising. The skin on my face doesn't look the same, noticed tartar on my teeth. I'm 82 and have had bronchiectasis for 20 plus years and lived all these years without Brinsupri, I will probably stop the medication, I see my doctor this week. Three weeks ago I learned I have MAC and started the 3 antibiotic regimen and side effects worry me. Two months ago I had pseudomonas and was treated. N