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aewin avatar

GCA conserns

Polymyalgia Rheumatica (PMR) | Last Active: Jun 25 12:11pm | Replies (47)

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Profile picture for kayept @kayept

aewin, I see this was posted 2.5 yrs ago. I would be interested to know how it all came out. I was diagnosed with PMR Oct. 2025 after 4 months of unexplaiable debilitating pain and soreness. I was warned, early on, to look out for GCA symptoms as this can result in strokes and blindness. I developed unusual GCA symptoms Jan 2026. Nightly jaw pain 8/10, soreness at temples and posterior base of my skull. Jaw claudication with chewing firm foods, but no headaches. My PCP didn't pay much attention because it wasn't the classic symptoms. My research revealed that I was, in fact, having GCA symtoms. After 5-6 weeks I convinced my PCP. The temporal artery boipsy confirmed the diagnosis. My wonderful rheumy with decades of experience is Hungarian. She is fabulous. She consulted with my PCP and insisted on the surgery.
I pray you found a knowledgeable rheumy and received a definitive diagnosis without any permanent damages.
This forum of fellow PMR/GCA sufferers has helped educate and uplift me. God speed to you on your journey.

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Replies to "aewin, I see this was posted 2.5 yrs ago. I would be interested to know how..."

@kayept Dear kayept. Thank God it was not confirmed that I had GCA, the symptoms disappeared within a few weeks, maybe it was really a migraine. No symptoms have appeared since then. Now I am taking low dosage steroids for the PMR and receiving biological therapy. I hope you are well and stay strong! Hungarian doctors are famous and respected all over the world.