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Permanent SIBO due to removal of ileocecal valve

Digestive Health | Last Active: Apr 2 6:54am | Replies (191)
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@tiss

Rachel, I can only imagine how frustrated you must be. It's so hard when food and our bodies are at odds with each other. The only thing I can add here is that I have been unable to get off Xifaxan because the symptoms always return-- gas, bloating, loose stools, discomfort. So finally my dr got a special dispensation for me through my insurance company to pay for it long term, like indefinitely. I I take 3 550mg tablets a day and it keeps things working right. I also take Align every day. Three is no way for the bacteria to keep from populating in our small intestines since we have wide open anastomoses from our resections. The best of luck to you.

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rachel_b | @rachel_b | Jan 23, 2019

@tiss thanks so much for your reply and the information 🙂 You're right, it's extremely frustrating and I'm just dying to find something that works because it affects quality of life sooo much 🙁 A couple questions:

Did it take a while for Xifaxan to start working for you in the beginning? I tried a two-week course a couple months ago which didn't seem to make a difference, and now I'm trying it for a month (or longer) to see if it kicks in eventually, but I'm not sure if that will happen or not.

Does the Xifaxan on it's own clear things up for you a lot, or is it only when you also take the Align with it?

Do you pretty much eat what you want or do you also follow diet restrictions in addition to the Xifaxan and Align in order to keep things working?

I'm willing to try any combination of things - just want to find something that works 🙂

Thanks again!

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