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← Return to Brinsupri experience after 3+ months
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Brinsupri experience after 3+ months
MAC & Bronchiectasis | Last Active: 4 hours ago | Replies (293)Comment receiving replies
I am right there with you as I am now 3 month on Brinsupri. My coughing seems endless - really bad mornings & evening right after dinner and before bed. So very exhausting. I am beginning to wonder if certain food trigger mucus production and wonder if it might be wise to seek a nutritionist. I really want some cough free days, w/o mucus production. Getting the side effect of the common cold on top if BE was exhausting. It is really wearing me down. I find I really don't want to go many places as the coughing leaves people around me wondering. Feeling socially isolating. I too am looking to the mind-point review. Every time the educator askes me if I am better or worse - my replay is worse.
Replies to "I am right there with you as I am now 3 month on Brinsupri. My coughing..."
@tolepainter I’m now in my sixth month of Brinsupri. It was slow, but gradually I’d have a good day, and after several months started stringing the good days together. I still can have a bad day, but I bounce back. I’m also doing manual air clearance twice daily, and nebulizing 7% saline twice daily.I was advised at the onset to be diligent of any foods that increased mucus…for me it was dairy. Specifically ice cream, Greek yogurt which I had daily and milk. Just switching to dairy alternatives on those three things was a game changer for me. For other people it can be entirely different. Fats in moderation such as cheese, French fries etc do not trigger me, nor does caffeine. But it does for others. My cough is non existent except after my nebulizing and clearance but minimal at that.Good luck to you.Jeanne
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@tolepainterWhat techniques and meds are you using for airway clearance. Also, what’re your sputum cultures growing? Hope you find answers soon.