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Profile picture for lhstephenson @lhstephenson

@susanf8 not really sure what caused the fistula, but I have my suspicions. I noticed an unusual bulge in my vaginal area approximately 15 years ago. I went to a rectal physician who diagnosed it as a rectocele. About five or so years ago, I noticed air discharge from the area and upon palpitation I could feel a small bump. I guess this was probably the beginning of the fistula. I was referred to a gynecologist who said he would be unable to repair it because my entire rectum was removed and there’s no tissue for a rectal flap. I guess that’s the main issue the rectal surgeon in Dallas had. He tried to sew up the fistula and that did not work. I have no problem with traveling to the Mayo Clinic, but I think we have fabulous physicians in Texas, I just need to find one that has experience with my particular issue. I would not be against using mesh to seal the fistula, although no one uses mesh anymore, except with hernia repair in the abdomen area. I guess I’m just searching for a surgeon who’s had experience with this kind of issue.

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Replies to "@susanf8 not really sure what caused the fistula, but I have my suspicions. I noticed an..."

@lhstephenson when I had my fistula repair in the 1990s, it was done at Mayo with both a colorectal and gynecological surgeon attending. It worked until I had my first bout of pouchitis.

There was discussion about using a muscle in my leg to put between the vagina and j-pouch if the initial repair didn't work, but I never explored that because with chronic inflammation, it wasn't likely to last.

I have no idea if this is still a technique that is used, or what the technical name of the procedure is.

Anyway, here is the direct link to Mayo, I would suggest, if you decide that something you want to explore, that you go to Mayo Rochester, they are the biggest.
https://mayocl.in/1mtmR63