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Permanent SIBO due to removal of ileocecal valve

Digestive Health | Last Active: Apr 2 6:54am | Replies (191)
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@steeldove

@pknw Knocked my socks off when you mentioned removal of your ileocecal valve! I didn't think any traditional MDs even acknowledged the existence of the ileocecal valve. Who diagnosed a problem that required removal? And what was the problem diagnosed?
After two bouts with SIBO, the last gastroenterologist I saw said that the breath tests are not very accurate or reliable, and that often what shows as SIBO is really something else.

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Replies to "@pknw Knocked my socks off when you mentioned removal of your ileocecal valve! I didn't think..."
pknw | @pknw | Aug 27, 2017

I had an encapsulated appendicitis which involved my ileocecal valve, small amounts of both the large/small intestines~all had to be removed. SIBO has become a chronic permanent condition for me, as bacteria has no barrier to block transference from the large intestine to the small intestines and back.
Most SIBO information out there seems to address the need for antibiotics, diet and ways to regain a healthy digestive tract~my
questions are to get answers for how to deal with a 'incurable' SIBO, in hopes to live a long and healthy life as possible.
I think I need a doctor who specializes in SIBO and/or a nutritionist who deals with SIBO issues. Thanks for your interest.

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