At present we are trying to calm down the Carcinoid liver cancer by doing a 20 CC injection of Sandostatin in each of the upper leg/hip area. This is important to get the cancer calm as I have developed carcinoid heart disease too. On Sept 21 I will have open heart surgery to replace the 2 valves on the right side of my heart. My surgery will be at Mayo Rochester.
As for my cancer, most of my symptoms are gone, however, usually one week prior to my injections I get a low grade fever, chills, bloating and lower abdominal discomfort from my swollen liver. The injections are painful at first as I've gotten quite thin with little muscle to inject into., but with rest and then walking it off it's better.
As for my heart, I am more short of breath and simply cannot do stairs well at all. Once I am strong enough after surgery, the oncologists will take over and be more aggressive with treatments. I am getting tissue (animal) valves. So we don't want the cancer to attack the new valves.
Stay calm, positive, and take one day at a time.
We so appreciate the update, Mollie. I am so glad that you have a plan in place for dealing with the symptoms of the carcinoid and also the heart issues. Please be assured of my prayers for you as you approach the Sept. 21 heart surgery.
Do you have family and friends to support you during this time?
@mollie59
We so appreciate the update, Mollie. I am so glad that you have a plan in place for dealing with the symptoms of the carcinoid and also the heart issues. Please be assured of my prayers for you as you approach the Sept. 21 heart surgery.
Do you have family and friends to support you during this time?
Teresa
Hello @mollie59 and @cjohn
I was thinking about you both and wondering how you are feeling. Any new treatments for your Carcinoid heart problems?
We would love to hear from you!
Teresa