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Find a rheumatologist in Northern Colorado
Polymyalgia Rheumatica (PMR) | Last Active: Jun 20 8:27am | Replies (17)Comment receiving replies
sorry that got cut off. My doctor's nurse did have to go after the insurance consistently. She is a bulldog.I had the prescription but never used it as I was tapering well off prednisone.
Boy, I hate the AI that selects words for me. I just re-read my last email to you (@stonewheel). There are ins and outs (not insane) at getting this prescribed. Of course no insurance wants to pay since it is so expensive. But, it sounds like you are already on it and just need re-fills/re-ups).
Good luck and I am sure if you put the request out to this chat room (Connect Mayo) there would be a few stories about obtaining Kevzara.
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@petermccarville
Hi. Thanks for the reply. I am already getting a biologic (Kevzara) and it is fully covered by my insurance. I have Medicare and an Advantage Plan that is good to me. I’m grateful.
My PCP was surprised that my rheum. did not suggest the 3-week interval instead of the standard 2/week, as that is commonly done in cases like mine. I thought the same thing and also wondered why she didn’t reduce the dosage, which is another option listed in the Kevzara prescribing literature/guidelines.
My PCP suggested that I do blood labs again, three weeks after my last injection, and if ANC and Platelet Count were acceptable that I go ahead and take the injection. They were, and I did.
I’ll repeat the lab test in three weeks again and if acceptable, I’ll take another injection.
The response by my rheum. will be interesting. But, she’ll see that my actions are validated by the Kevzara prescribing prescribing policy. This will be the second time that I have to show her the Kevzara prescribing policy.
I’m now down to 2.5mg/day of Prednisone, with Kevzara. I don’t think I need the Prednisone other than to assist as my adrenals as they “wake up.” They might be fully awake, I don’t know.
Proving that I am cautious, I fully intend to continue tapering gently as is recommended practice.
Ain’t life grand?!