← Return to Femoral neck -2.8: Would you start treatment now?

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Profile picture for oopsiedaisy @oopsiedaisy

@strongbonez I was on Fosamax for just over five years. I had reasonable gains for the first two years, was stable through 3 years then my T-scores started declining in years 4 & 5. During this time, my PCP was managing my treatment.

Just after my fifth year on Fosamax, as I was preparing to take a "holiday", I had a compression fracture at T8 caused by bending over a bathtub and placing a lot of pressure on my rib cage. It didn't even occur to me that it might be a fracture as I have worked out for years and had occasional back pain. When it didn't get better after three months, an x-ray was ordered and a healed fracture of "indeterminate age" was reported.

After that, I stopped the Fosamax and was sent to a rheumatologist who performed a few basic blood tests and prescribed Tymlos. My insurance company cut me off after four months and made me take generic teraparatide which gave me severe constipation that was unrelieved even with laxatives. I chose to go off it at that point and asked my PCP to refer me to an endocrinologist affiliated with Stanford who specializes in osteoporosis.

She prescribed Evenity, which I took for 12 months. I just had my first Reclast infusion yesterday. She was the one who discovered the hypercalciuria. I feel like I am good hands now with her.

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Replies to "@strongbonez I was on Fosamax for just over five years. I had reasonable gains for the..."

@oopsiedaisy thank you so much for sharing your journey with me! It's very helpful to hear what medications you have used and your results. So glad you are now with an endocrinologist who you feel comfortable with.
My endocrinologist has recommended Prolia followed by Reclast. I just feel like it's a cookie cutter response he could give to any of his patients, so I would appreciate hearing how things go with you and the Reclast.
I hope it goes really well for you. We could all use a little good news when it comes to medications for treating osteoporosis!

@oopsiedaisy
Like you said, side effects are real and affect everyone differently. I am under a Gi care for constipation now, let alone if I start meds. How was this handled as a real side effect for you and how was it managed or did you just stop the meds?

@oopsiedaisy Thank you for sharing your story. You've had quite a journey, and I'm glad you finally found an endocrinologist you trust. One thing that really stands out to me is that the hypercalciuria wasn't discovered until much later. A few people have now mentioned secondary causes of osteoporosis, and I will be asking about additional testing before deciding on a treatment pathway. I'm also struck by how much your treatment plan changed after the compression fracture.