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New to group, Pre biopsy testing
Prostate Cancer | Last Active: 1 day ago | Replies (16)Comment receiving replies
@mjp0512 I have been fortunate in my life to never have needed more than the family physician to handle the coughs, colds and sniffles.
I'd like to go straight to #3! Where do you find these "care teams"? The nearest place to me would be Duke University Medical (about 4 hours away). How do you get to these teams as opposed to individual doctors? What do you ask for?
Replies to "@mjp0512 I have been fortunate in my life to never have needed more than the family..."
@corsair - Looks like your questions have been answered above. One thought since you said you were 4 hours away from Durham, maybe another cancer center is closer. I don't know where you are so here's a couple links to check.
https://www.cancer.gov/research/infrastructure/cancer-centers/find
https://www.nccn.org/home/member-institutions
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@corsair
My recommendation is to start making calls to the best Doctors/Centers in your area.
Last October, I was in your situation post MRI/Biopsy at local Urologist/Hospital.
I started asking friends and friends of friends who they recommended. I called City of Hope and asked to meet with the best Urologist (that had been recommended to me). From that initial call, everything has gone very well. Within two weeks, I was meeting with Surgeon and Radiation Oncologist. Have continued to work thru the process of gathering info and additional tests.
You may need a referral, but from my experiences, best just to start making phone calls and ask to be seen by their best Surgeon/Urologist and Radiation Onvologist.
Based on Biopsy and MRI, appears you want to be meeting with a great Surgeon and Radiation Oncologist and ask, “Why is Active Surveillence not appropriate at this time?”
I would want a center and Radiation Oncologist very capable of HDR. I think you want that as an option, if treatment is desired/needed.
Your BHP will be part of the treatment discussions (when treatment is determined to be necessary).
Best Wishes on finding excellent doctors and facility. Best Wishes on being able to delay treatment, if possible.