I also have been diagnosed. I was diagnosed 2 months ago after being hospitalized for a week. There are several Facebook support groups on Facebook that I have joined and have given me lots of support and answers

Thanks. I was diagnosed 3 years ago following several admissions to hospital.

Thank you @lisalucier for connecting all of us and hi to @tuckerdoodle @foggy and everyone else facing the challenges associated with autonomic dysfunction - you are not alone!! I was diagnosed in 2017, after 3 years of undergoing tests to rule out everything obvious and trying to convince specialists that the symptoms were connected. So now there's a name to it, but because it's idiopathic the best we can do is treat the symptoms, which for me right now means seeing a pulmonologist for shortness of breath, physical therapist for balance and gait, and urogynecologist for bladder dysfunction. The neurologist is so overloaded my next doublebooked appointment is June 2019... The latest challenge is getting approved for short-term disability from work to be able to keep up with all the appointments and treatments. What stage are other people in?