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Tuckerdoodle (@tuckerdoodle)

Autonomic Dysfunction

Brain & Nervous System | Last Active: May 13, 2020 | Replies (19)

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Hello @tuckerdoodle, I would like to welcome you to Mayo Connect along with Colleen. I don’t have the same health issues but I can relate to searching for answers for my own health conditions. I think you have a head start since you have found Connect and are asking questions. I’m hoping others are able to share some helpful information. I saw a patient video that I think may be helpful.

What happens when you have a disease doctors can’t diagnose – TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome:
I use Google Scholar (https://scholar.google.com/) when looking for hard to find information. You can click 2017 in the left column to get the most recent information. I did a search on your phrase “autonomic dysfunction treatments” and came up with quite a bit of information.
Keep pushing your doctor for answers. You are your best advocate!


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Replies to "Hello @tuckerdoodle, I would like to welcome you to Mayo Connect along with Colleen. I don't..."

Hello @johnbishop, and thank you so much for the video from Ted…it was very interesting and kinda scary also. It nevers stops to amaze me when you have a case in which you have to think outside the box, doctors rely on “it is all in your head” diagnosis. Sad. I have learned to avoid trigger words, emotions and mentioning certain symptoms to keep from losing a doctors attention. You can literally watch their interest disappear in your case. And the standard relpy of, do this test and I will see you back in 3 months drives me up a wall. Why 3 months ? Are things going to be better in that time period, no, no they are not…so the patient lives in limbo, waiting, hoping and praying. Thank you again…