@suecedar1028

There no 'standards' testing for LC patients so it was a new horizon for my doctor to treat me. After a year and a half to no success, I suddenly asked her: I feel like I'm dying from the pain in my mid section, do you think my immune system has been trashed? This lead to a beginning for solutions.

I suggest having a discussion with your doctor about doing a T-Cell panel on your blood. This marked for me the beginning of finding solutions. My CD8 NK cells were so low they were not able to remove Covid waste from my body.

There were many posts in this Mayo LC group over the past few years that lead me to success in treating my LC. The first post dealt with a connection to my symptom of severe pain in my 'mid section' close to my liver. This is the 'technical' article that assisted my doctor to begin testing. Copy it and take it with you to your next doctor appt: https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2023.1150105/full

Ask your doctor: is my liver in normal range or do I need images of my liver? While my labs were normal my mid section pain was off the charts. Images taken of my liver confirmed what was happening to my body. While I don't consume alcohol or eat fatty foods, the images showed liver damage. These tests/images lead to a program of recovery. There is one national laboratory that has opened up a option to everyone without a doctor lab prescription. It is Lab Corp: https://www.ondemand.labcorp.com/blog/how-can-i-improve-my-liver-health-3-tips-for-self-care

It has helped me to change the sense of feeling discouraged into a mind set: It is so great to not feel as if I've been run over by a truck everyday.