@belinda5000

Hi Belinda,

All here have our own struggles with epilepsy. It just doesn't affect us, but also our loved ones around us. They won't understand what we are facing, and vice versa. It's tough, and this forum is a place to each share our own experiences in search for that bit of sunshine.

It's a chronic condition which we have to first accept it's never going to be cured, only merely to be managed. Mine is also a refractory one, and my neurologist said if I was to undergo some surgery, it's as good as removing my entire brain. A body can take awhile and a bit of time to get used to a new drug with the same old active ingredient. I lost count of how many different medications I tried as well as the gambles with certain carefully monitored dosage combination over the past ~9 years. I have mild annoying seizure almost everyday. I thought Briviact might work, but now it seemed it wouldn't. But hey, there's always the next thing to try. When it's time for me to leave this world, at least I can still tell myself I did't chicken out this fight to make myself better.

I am glad I found so much support here, which is priceless. There are just so many great people I met here to inspire me to do better. Look at the sunlight. If you keep on staring at the darkness, it'll always be a dark path ahead of you.

Cheers,
Louis