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SI Joint Dysfunction: Anyone had their SI joints fused?

Spine Health | Last Active: Jul 12 4:24pm | Replies (72)

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Profile picture for loriesco @loriesco

@sbtheplumber1 I wish you could come to Ucsd and see Dr. Zlomeslic. He does everyone’s revisions and he’s so wonderful and caring. A lot of people drive the whole day to come see him and he gives them all of his time. They have such an amazing team. I don’t believe you can’t qualify for another surgery, unless someone like him or to tell you that. He’s a magician. I’m really glad you are getting some pain relief, but be careful of all of that medication. It is all really heavy duty stuff.
The methyl prednisone they prescribed. I hope that will just be short term for you because long-term. It is not healthy. Many people have detrimental consequences from the prednisone or Cortizone especially on their bones. Short term it’s great it can take down inflammation or swelling like nothing else.
May I suggest that you stay aware of the medicines and take the least amount that relieves your pain. Everyone’s surprised that I’m not addicted to the Percocet after 25 years, but I always took the lowest dose to knock out the pain and no more. Last week I was SUPER sick with a Gastro intestinal virus. I was so sick I didn’t take any pain medicine for three days! It was bad that I was so sick, but it was good to be able to test myself. All the nerve medication’s they tried to put me on (the Lyrica, the Cymbalta, and I forgot the name of the other one. ) they would make me feel like I had pins being stuck in my head. It was such a horrible feeling I said no thank you. The muscle relaxers (parentheses the Flexeril, the roboxin and I forgot the other one) they were would make my body feel like Jell-O and I couldn’t do anything. Before narcotics became an issue I had a great doctor and we tried a whole host of narcotics, but none of them worked for me they just made me feel edgy and high. The only thing that worked was the Percocet.(oxycodone). The low-dose allows me to exercise, get up and go when otherwise would feel like sitting all day and have an active life. I don’t know what life has in store for me, but we’ll just take it as it comes. It sounds like you have a good attitude now that you’re getting better help.! I’m excited to hear about your cervical MRI results. You can always message me in private if it’s easier to find me. I get lost trying to come back to these message threads sometimes.
My cervical surgeries were not as successful as they should’ve been because my C5 fell apart. And the screws moved where they placed them so with the second surgery came a loss of mobility. I can still have pain in my neck because my surgeon didn’t go up one more notch and he didn’t realize the arthritis was so bad. It would’ve immobilized me even more. So it was a trade-off. But without the surgery I would’ve been in screaming pain, trying to make the bed or follow my passion which is painting and art. So it is one of those things that I just accept that my life is not going to be free of the pain and I’m not gonna be free of the pain medicine but I can do what I love. Makes sense? I hope you get very good care. You deserve it!!!

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Replies to "@sbtheplumber1 I wish you could come to Ucsd and see Dr. Zlomeslic. He does everyone’s revisions..."

@loriesco you remind me of another lady I met on here and actually became close friends , she became like a sister helping me thru all the stuff I didn’t understand then when I had my surgery she just vanished , she stopped responding to my texts , phone calls I’d just like to thank her for helping me get this far! Knowing she was having health issues and was single with one son I almost called the police for a welfare check on her.
Having Narcolepsy is tough when taking pain meds I sacrifice the pain throughout the day to be able to only need one or two naps. I had to ask the doctor to lower the dose not many do that ! I can’t stay awake to type , it has been heartbreaking typing for an hour what others could type in 10 minutes then I doze and since I’ve developed drop finger I tend to accidentally hit delete and lose it all.
I’m going to see the Cleveland Surgeon next month in hopes she can offer me something !

@loriesco I’m going to Cleveland next week to see a Neurosurgeon and a Pa-C for urology since I can’t feel my bladder sensations! I was hospitalized last weekend for right side stroke symptoms- pounding headache ache, blood pressure dropped, head, neck and hand numbness luckily it was no Brain stroke but I came home and googled the inflammation in Thoracic after Stimulator paddles were removed and it mentioned Spine Strokes ( I’ve never heard of them before) so I’m anxious to see what the Doctor figures out