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SI Joint Dysfunction: Anyone had their SI joints fused?

Spine Health | Last Active: Jul 12 4:24pm | Replies (72)

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Profile picture for sbtheplumber1 @sbtheplumber1

@loriesco thank you for reaching out to me I took a break from here after I posted this!
I finally got the chance to go to Cleveland last week and found out I have a nerve rubbing not pinched! She suggested Steroid injections to locate my pain which she sent me to a pain clinic there which they discussed Ketamine Infusions! i came back home and my local pain doctor put me on a Medrol dose pack, and it has helped my tailbone pain! I had to lower my Percocet from 7.5 to 5 I couldn't stay awake and having Narcolepsy makes it even worse.
I find out results tomorrow of a Cervical MRI! my pain doctor wants me to try Lyrica and possibly Fentanyl patch which i think I'll pass on the patch.
my pain doctor finally told me with all the damage in my back more than likely no surgeon will touch me!

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Replies to "@loriesco thank you for reaching out to me I took a break from here after I..."

@sbtheplumber1 I wish you could come to Ucsd and see Dr. Zlomeslic. He does everyone’s revisions and he’s so wonderful and caring. A lot of people drive the whole day to come see him and he gives them all of his time. They have such an amazing team. I don’t believe you can’t qualify for another surgery, unless someone like him or to tell you that. He’s a magician. I’m really glad you are getting some pain relief, but be careful of all of that medication. It is all really heavy duty stuff.
The methyl prednisone they prescribed. I hope that will just be short term for you because long-term. It is not healthy. Many people have detrimental consequences from the prednisone or Cortizone especially on their bones. Short term it’s great it can take down inflammation or swelling like nothing else.
May I suggest that you stay aware of the medicines and take the least amount that relieves your pain. Everyone’s surprised that I’m not addicted to the Percocet after 25 years, but I always took the lowest dose to knock out the pain and no more. Last week I was SUPER sick with a Gastro intestinal virus. I was so sick I didn’t take any pain medicine for three days! It was bad that I was so sick, but it was good to be able to test myself. All the nerve medication’s they tried to put me on (the Lyrica, the Cymbalta, and I forgot the name of the other one. ) they would make me feel like I had pins being stuck in my head. It was such a horrible feeling I said no thank you. The muscle relaxers (parentheses the Flexeril, the roboxin and I forgot the other one) they were would make my body feel like Jell-O and I couldn’t do anything. Before narcotics became an issue I had a great doctor and we tried a whole host of narcotics, but none of them worked for me they just made me feel edgy and high. The only thing that worked was the Percocet.(oxycodone). The low-dose allows me to exercise, get up and go when otherwise would feel like sitting all day and have an active life. I don’t know what life has in store for me, but we’ll just take it as it comes. It sounds like you have a good attitude now that you’re getting better help.! I’m excited to hear about your cervical MRI results. You can always message me in private if it’s easier to find me. I get lost trying to come back to these message threads sometimes.
My cervical surgeries were not as successful as they should’ve been because my C5 fell apart. And the screws moved where they placed them so with the second surgery came a loss of mobility. I can still have pain in my neck because my surgeon didn’t go up one more notch and he didn’t realize the arthritis was so bad. It would’ve immobilized me even more. So it was a trade-off. But without the surgery I would’ve been in screaming pain, trying to make the bed or follow my passion which is painting and art. So it is one of those things that I just accept that my life is not going to be free of the pain and I’m not gonna be free of the pain medicine but I can do what I love. Makes sense? I hope you get very good care. You deserve it!!!