@tj1967
I have run into a lot of people with equivalent issues to what you have. I do attend nine advanced prostate cancer meetings every month So I hear a variety of cases.
You have a very aggressive case of prostate cancer. There is just no doctor that would recommend you’d be on ADT for less than 18 months.
You have a high Gleason score. You have a pT3a, EPE, A PSA that never became undetectable after surgery, Which is a major issue. You can stop Orgovyx sooner than 18 months, But your PFS (progression free survival) is probably going to be very short.
It would make a lot of sense for you to attend an ancan.org Advance prostate cancer weekly online meeting. They’ve been helping people 15 years with prostate cancer treatment questions. They’re very experienced with working with people with your level of cancer. I know what they would say, 18 to 24 months for sure. They have been seeing people with your level of prostate cancer after treatment and those that survive the longest stay on ADT.
I got prostate cancer at 62 and had surgery, 3 1/2 years later, it came back and I had salvage radiation. 2 1/2 years after that, it came back and I went on ADT. I’ve been on it for eight years now. Yeah, it gave me a little bit of a belly, but I’m 6‘4“ tall and weigh about 189. I walk on the track a mile twice a day (I was running, but my Orthopedics said stop because of my new hip), And I go to the gym three times a week and work on my muscles, So I don’t lose any more muscle strength. I also take a bone strengthener, Though I just finished and what I took will last a year or more. I am 78 and You would never guess I had prostate cancer and was on ADT for so long.
If you’re keeping good shape and exercise, ADT won’t have a major effect on you long term.
If it continue to have a problem with hot flashes at night, there are a lot of solutions, Come back and ask for help.
@jeffmarc
Thank you for the thoughtful response. I really do appreciate it.
I know I have some risk factors and I am definitely taking the ADT recommendation seriously. My doctors are talking 12 to 18 months, with 18 being preferred, so I am not ignoring that.
At the same time, I am trying not to let my mind go straight to the worst case. My understanding is that the remaining PSA was most likely from microscopic cancer left in the prostate bed from where the cancer had pushed outside the prostate. My scans were negative, lymph nodes were negative, margins were negative, and seminal vesicles were not involved.
I did complete salvage radiation and I am on Orgovyx now, so I feel like I have taken the right steps. I’m just trying to better understand the benefit of 12 months versus 18 months for my specific case.
I appreciate the AnCan suggestion too. I may check that out.