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CRPS - anyone suffering with complex regional pain syndrome
Chronic Pain | Last Active: Apr 27 4:59am | Replies (349)Comment receiving replies
Yes I do but it’s very hard to talk to doctors that don’t know much about CRPS I have to be proactive for myself and look for my own answers I am very careful about my diet especial now just lost as to what to do
Replies to "Yes I do but it’s very hard to talk to doctors that don’t know much about..."
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That’s the life of living with a rare disease. You must be well versed in your own disease and disease state- Where you are in the progression of the disease. Then you must learn the medical jargon of your pain specialist- how they speak and understand language.
Then you must teach them- not insult them but show them what they DON’T know about your disease state and rare disease- CRPS in order to acquire the best management of that disease state.
It sounds hard to do but in reality it isn’t!