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Yes I am right there with you. And I keep getting new fun stuff like OLP which I’ve had for a year WO remission. I too have been on opioids and detoxed. Only I’ve detoxed 7 times trying to live in the pain . I cannot. My life is better with opioids
And yes it is a giant double edged sword. I try every modality suggested but unfortunately I am now in maintenance survival mode and I don’t want to die just do t know how I can live like this.
Maybe it’s been a little shorter time my has only been 18 yrs . I’m 68 so closer to the end but truly understand all your issue - mental ones too. My new goal is to try and not complain but it is difficult when I move and yet something else hurts.
I guess I’m happy to read your post. We can only support each other knowing our life sucks and yet we have so much to live for! Hang on and know you are not alone.

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Replies to "Yes I am right there with you. And I keep getting new fun stuff like OLP..."

@suecutuli do the opioids actually give you relief, I have nerve pain and I’ve tried Percocet and Buprenorphine without any success in relieving the pain!

@suecutuli hi Sue, I have advanced MS fibromyalgia and a whole bunch of other stuff and I do have corn, chronic pain and very bad depression so I hear you too and yes, all we can do is be there for each other and hear each other just so you know a little hair that my brother gave me that'll help even though you're on opiates there's something that is called jewel action. It's a Tylenol ibuprofen mix that you can get on Amazon and it acts like it's got it it's both of those together and if you take three of those, it's like taking 750 mg of a painkiller it helps boost my pain meds and I'm ona very high dosage of pain and it does help some just an FYI and again you can get that on Amazon I hope that might help you and other people that have chronic pain that we do. God bless you, hon.