@suecedar1028 you are not alone. had covid in dec. 2020, 2 vaccines and 1 booster. only lost taste/smell. however over time, i've become sensitive to many many foods, fatigue, brain fog, insomnia, tingling in feet are my usual daily symptoms and i'll be 80 on mon. have been under care of naturpath for a year; bloodwork indicated what foods i'm highly sensitive to and i try to avoid. i joined survivors corps group on facebook and have found so many similar symptoms and answers. i do have an autoimmune disorder and leaky gut. there's alot of info. on youtube. i still can exercise daily and that's been my salvation and i nap at least once a day. i take h1 and h2 antihistamines which seem to help the brain fog and fatigue and will discuss taking these with naturpath next month, i have improved over the years but working hard on accepting that i am no longer who i used to be...some moments are terrible, some are good. we are not alone even if it feels that way.

@suecedar1028 you are not alone. I’ve read over 20 million people in the USA suffer from long covid. My husband is one of them. It’s horrible. Doctors in our area don’t have a clue. Test after test taken. Everything is “normal” But it’s NOT! A lot of his symptoms have disappeared but brain fog, phlegm in his throat and fatigue remain the same. The cognitive issue is awful. Stay strong and research on your own. Take your findings to your doctor. Try to get to a doctor who believes in long covid. We haven’t found anyone who actually can help yet so as of now it’s one day at a time. Some good, some not so good. Hang in there.

@suecedar1028

There no 'standards' testing for LC patients so it was a new horizon for my doctor to treat me. After a year and a half to no success, I suddenly asked her: I feel like I'm dying from the pain in my mid section, do you think my immune system has been trashed? This lead to a beginning for solutions.

I suggest having a discussion with your doctor about doing a T-Cell panel on your blood. This marked for me the beginning of finding solutions. My CD8 NK cells were so low they were not able to remove Covid waste from my body.

There were many posts in this Mayo LC group over the past few years that lead me to success in treating my LC. The first post dealt with a connection to my symptom of severe pain in my 'mid section' close to my liver. This is the 'technical' article that assisted my doctor to begin testing. Copy it and take it with you to your next doctor appt: https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2023.1150105/full

Ask your doctor: is my liver in normal range or do I need images of my liver? While my labs were normal my mid section pain was off the charts. Images taken of my liver confirmed what was happening to my body. While I don't consume alcohol or eat fatty foods, the images showed liver damage. These tests/images lead to a program of recovery. There is one national laboratory that has opened up a option to everyone without a doctor lab prescription. It is Lab Corp: https://www.ondemand.labcorp.com/blog/how-can-i-improve-my-liver-health-3-tips-for-self-care

It has helped me to change the sense of feeling discouraged into a mind set: It is so great to not feel as if I've been run over by a truck everyday.

@suecedar1028 I'm 3.6 years with LC. Severe fatigue and PEM are my worst symptoms. I'm on LDN and Abilify as per MD. They do help but I don't think they make a significant difference. Also many supplements recommended by doctors and this group. Maybe they help, but again, not enough to resume my prior very active life. There are millions of us out there. You are not alone and someday we will get the help we need. Hang on to that thought.

@suecedar1028 I caught covid in spring of 2024 and these symptoms stayed and got worse: fatigue, dizziness, shortness of breath, brain fog, some muscle/joint pain, and GI tract symptoms. I used to hike, backpack, run, and lift weights. Now I mostly stay home and rest. My house is dirty and the yards need help. I can cook simple meals but it's a struggle to do things. "Are you still tired?" and "You look ok" are common comments from friends. I've started to avoid socializing because I'm tired of people looking at me cross-eyed.

In the past two weeks, I've been taking tributyrin and various prebiotics every day, and my gut symptoms like diarrhea have gone away. I'm hoping that the immune system might heal some with these new supplements. I have tons of supplements, which mostly don't do anything.

@suecedar1028 I have been having symptoms for a couple of years. I am so tired of fighting it, I just sit in my chair at home or go to bed. I can't stand long enough to pour myself a glass of water

@suecedar1028 As you can see, there are many of us still dealing with this brutal virus. I am going on 4 years. I did not get the vaccine. I still have fatigue, post-exertion malaise, brain fog, joint pain, depression, GI issues...depends on the day. I understand the loneliness and isolation that comes with this. I was so outgoing, worked two jobs at one point and ran every morning. Now, I am in school, online, and even doing my assignments causes fatigue. I miss being around people and yet, there is a part of me that does not want to be. I get tired of explaining why I feel bad. I get tired of people not knowing what the hell I am talking about and saying, "Long COVID? What is that?" I do what I can to advocate. I also try and do my own research into what the studies are saying. You are not alone in this, at least on this platform.

@suecedar1028 For almost two years, I've had bad fatigue, that, coupled with dizziness, brain fog and shortness of breath, had kept me at home most days. I'm lucky to be able to drive a mile or so to get to grocery stores. My PCP used to dismiss my long covid, but a month ago, during my last visit, he admitted that he now has other patients who have what I have. He gave me some vials of terzipatide, Zepbound, and I gave myself a micro-dose, a third of the 2.5mg vial. My fatigue and dizziness got much worse and I could hardly get around my house and could not drive, so I gave up on GLP-1s as a solution.

In the past two weeks, I've been trying tributyrin and prebiotics, and my GI symptoms are much improved. I'm hoping that an improved gut leads me to less fatigue and other symptoms. And I'm also trying a TENs unit and other treatments on my vagus nerve.