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Any Lyme disease sufferers out there?

Autoimmune Diseases | Last Active: Jun 17 11:15am | Replies (29)

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Profile picture for meganwynn @meganwynn

@becsbuddy Dr. Phillips was the first clinician who treated my Lyme (and co-infections) after my PCP hid my confirmatory Western Blots from me in an effort to convince me I did not have Lyme--which, by the time I discovered his deception, had raged past the point of control. I contracted it in 2002, lost my beloved job as a college professor in 2006, retired involuntarily on disability and have dealt with a cascade of perhaps consequent medical problems since: multiple endocrine neoplasia with acomegaly, Sjogren's, brain tumor, deconstructing spine, etc.

How much worse would it be if Dr. Phillips not prescribed IV antibiotics? I would be dead. I was lucky to have access to a Lyme literate physician. The endocrinologist who diagnosed my acromegaly had trained Dr. Phillips at Yale and referred to him as a "crank." That's how bad it is out there for Lyme--patients and doctors. I respected both of them, but the medical world is not big enough for Lyme disease.

Year after year I hold on. I wish I could do more for others suffering this horror. This dual horror--the disease AND its exclusion from understanding by medical gatekeepers.

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Replies to "@becsbuddy Dr. Phillips was the first clinician who treated my Lyme (and co-infections) after my PCP..."

@meganwynn
Does the Hippocratic Oath still exist?

I often wonder about this after my own experience with a neurologist in Germany. When I sought medical help for severe migraines, I was told that my symptoms were simply "female hysteria" and advised to take aspirin.

Nearly twenty years later in the USA, an MRI revealed that I had a Chiari Malformation Type I, Syringomyelia, and multiple spinal abnormalities at C3, T11–T12, and L4–L5, as well as seven meningeal cysts.

Looking back, it is difficult not to question how such serious neurological conditions could have been dismissed for so long. Experiences like this raise important questions about medical bias, misdiagnosis, and the responsibility healthcare professionals have to listen carefully to their patients.