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Oncocytic Cell Carcinoma with angioinvasion
Thyroid Cancer | Last Active: 3 days ago | Replies (44)Comment receiving replies
Hello, I'm new here. Just received my confirmation of oncocytic cell carcinoma angioinvasive last Friday. My nodules were an incidental finding after imaging for my cervical spine. back in November. The cervial spine was fused first. Then I had FNA of the nodes (three on left and one on right side of my thyroid). One in my left lobe came back positive so my left thyroid was removed May 15th. After my surgery I learned that my surgeon had not removed any lymph nodes because I did not have a cancer diagnosis yet. I am waiting to hear back from my endocrinologist regarding next steps. My surgeons recommendation is to leave the right in there and do repeat imaging in December. But does want me to consult with endocrinology for recommendations and he stressed getting an endocrinologist that specializes in thyroid cancers. I am waiting to hear from the endocrinologist I have seen for their recommendations. Has anyone not had lymph nodes removed? And if so what happened after your positive diagnosis.
Replies to "Hello, I'm new here. Just received my confirmation of oncocytic cell carcinoma angioinvasive last Friday. My..."
@djasmer Really sorry to welcome you to this club. I had 7 lymph nodes removed during the first surgery (right side of thyroid removed) and then 5 lympth nodes removed during the second surgery (left side). They were benign for me thank goodness. I have noticed my allergies are worse after having so many lymph nodes removed and my Endo said that's actually a complaint he's heard before.
I think I understood your message, it sounds like you have some suspicious lymph nodes your Dr wants to monitor. With this type of cancer, if it's suspicious, it needs to go! But obviously that's just my opinion based on internet research I've done. I'd make sure to ask your Endo what are the benefits of leaving a suspicious lympth node vs the benefits of removing it. And I'd also ask "if it were you, would you remove it?". I've gotten more straight answers from Drs by asking what they'd do in my situation than any other question I've asked.
Good luck with everything, keep us posted. We're here for you.
@djasmer, have you had an appointment with the endocrinologist or oncologist in the meantime? How are you doing?
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@djasmer I also have angioinvasion of more than 6 vessels. My completion surgery was in Feb 2024 with no lymph nodes removed. During my regular ultrasounds 3 enlarged lymph nodes have been seen and so far my endocrinologist is monitoring.