Connect
← Return to CRPS - anyone suffering with complex regional pain syndrome
Discussion
CRPS - anyone suffering with complex regional pain syndrome
Chronic Pain | Last Active: Apr 27 4:59am | Replies (349)Comment receiving replies
@faithwalker Perhaps explaining to your care team what you have just relayed to us here on Mayo Connect will give them insight to how things really are for you. Keep a written journal of your pain and discomfort, to show them [include time of day/activity/level and place of pain] to present to them.
Like you, I have 2+ drive each way to my specialists. By the time I get there, my blood pressure is high, my discomfort can be unreadable.
Do you think a written journal might help you?
Ginger
Replies to "@faithwalker Perhaps explaining to your care team what you have just relayed to us here on..."
Connect
I’ve tried to relay my daily pain with apps and a journal but she didn’t seem interested in what it was like. Just what it was currently. I can try again if I could figure out a way to get her to actually use it.