@faithwalker Perhaps explaining to your care team what you have just relayed to us here on Mayo Connect will give them insight to how things really are for you. Keep a written journal of your pain and discomfort, to show them [include time of day/activity/level and place of pain] to present to them.

Like you, I have 2+ drive each way to my specialists. By the time I get there, my blood pressure is high, my discomfort can be unreadable.

Do you think a written journal might help you?
Ginger