CRPS - anyone suffering with complex regional pain syndrome

Benadryl (diphenhydramine) is an anti-histamine, for allergic reactions.

Hi all I just heard bout this forum I’m new. I was diagnosed with CRPS type 2 I get hives on left side of body do to a work injury , to my left hip lower back. Long story felt a take my breathe away pain in left hip/ lower back I fell onto big rocks without bracing my fall, company dr kind of blew my hip pain off said it was my back muscles had x ray of back called it a lumbar strain contusion, allowed to work 3 monthes entire time complaining of hip pain they did bone scan and closed mri finally that showed possible fractured hip starting to heal and hip labrum tear. Few days after injury I was getting raised hives on my hip that burned couldn’t touch them , asked company dr. Said no clue. Finally after being pissed I got my own drs had labrum surgery which lead to hives coming two days after from my neck to my ankles. Surgeon saw I explained the pain to touch lots of other issues I’ve never had in 47 years my left ankle swelled no reason etc. all my 4 treating drs that are amazing all agree , of course the work dr that’s hired says he doesn’t think I do. ( save ins. Money) is why says I don’t hit the Budapest criteria which all my drs use and I have 3/4 of all .. I’m getting Charlie horses so bad I’m in tears has anyone had this? From my hip to toes on left side. My pains a constant 5 when it’s real bad a 15-20 I’m in PA and on medical marijuana, 2400 mgs of gabapentin and flexerall. And Suboxen which is very interesting, was on pain meds years and years ago. Never did drugs I didn’t like the opiates and needed to ween down they prescribed Suboxen which also helped with the pain without the opiate side effects, I stopped the subs 5 days prior to surgery, when my surgeon saw the hives after surgery off the subs he pulled up a power point and said I knew I saw this in the crps power point, one of the Medications in the Suboxen helps desensitize the skin in patients that get the hives from the crps / pain they upped to 3 a day and it helps keep hives at bay! Love that I found this. Love to chat with anyone that has similar issues!!

REPLY

@mfmteam, I copied your post from the other discussion into the CRPS discussion. If you click the VIEW & REPLY button at the bottom of this email notification you will go directly to this post in the discussion and can meet other members discussing CRPS.

Posted by mfmteam @mfmteam, 3 hours ago
Hi all I just heard bout this forum I’m new. I was diagnosed with CRPS type 2 I get hives on left side of body do to a work injury , to my left hip lower back. Long story felt a take my breathe away pain in left hip/ lower back I fell onto big rocks without bracing my fall, company dr kind of blew my hip pain off said it was my back muscles had x ray of back called it a lumbar strain contusion, allowed to work 3 monthes entire time complaining of hip pain they did bone scan and closed mri finally that showed possible fractured hip starting to heal and hip labrum tear. Few days after injury I was getting raised hives on my hip that burned couldn’t touch them , asked company dr. Said no clue. Finally after being pissed I got my own drs had labrum surgery which lead to hives coming two days after from my neck to my ankles. Surgeon saw I explained the pain to touch lots of other issues I’ve never had in 47 years my left ankle swelled no reason etc. all my 4 treating drs that are amazing all agree , of course the work dr that’s hired says he doesn’t think I do. ( save ins. Money) is why says I don’t hit the Budapest criteria which all my drs use and I have 3/4 of all .. I’m getting Charlie horses so bad I’m in tears has anyone had this? From my hip to toes on left side. My pains a constant 5 when it’s real bad a 15-20 I’m in PA and on medical marijuana, 2400 mgs of gabapentin and flexerall. And Suboxen which is very interesting, was on pain meds years and years ago. Never did drugs I didn’t like the opiates and needed to ween down they prescribed Suboxen which also helped with the pain without the opiate side effects, I stopped the subs 5 days prior to surgery, when my surgeon saw the hives after surgery off the subs he pulled up a power point and said I knew I saw this in the crps power point, one of the Medications in the Suboxen helps desensitize the skin in patients that get the hives from the crps / pain they upped to 3 a day and it helps keep hives at bay! Love that I found this. Love to chat with anyone that has similar issues!!

@gracie2018 @dmac5 @madhouse30 @mlross4508 @janetdh @menville and others may be able to share their experience with CRPS with you.

Thank you I don’t know how I see if someone reply’s or wants to chat

Hi @mfmteam - If a member replies like I am doing, you will receive an email notification like this one. You can also click the VIEW & REPLY button to get back to this discussion and then scroll to the top and page through the different posts and ask questions of any member that has shared something and you might have a question about it. Hope this helps.

Got it thanks so much. I’m hoping someone sees and has common problems. Thanks for all your help.

Many thanks

Hi my name is Sheryll I have CRPS too I am always itchy have rashes I take antihistamines and topical jells such as magnesium jell or tch jells

Did you get my post?

@mfmteam
Hi there mfmteam, my name is Hank and I saw your post when it was over in the neuropathy discussion but did not have time to reply then. I do not know anything about CRPS. I know you are new here and just thought I might pass along my experience on Mayo Connect back in January when I was new here like you. What I did then and what you might want to do is, just keep up with all of the posts in this one discussion, at least at first. That way you can get a feel for what people like to discuss and the kinds of things they focus on. When I first got here there was a lot I did not understand about how to get around and some of the technicalities of how it is set up. I did not post at all for a couple weeks as I was mesmerized by all the stories of various people.

Just know that you will become more comfortable in a little bit of time. This forum is a wonderful way to connect with people and learn a lot you might not have heard before. You are in a place of maximum support and acceptance. There are good people here, almost exclusively. I hope you find some folks that you can share experiences with and maybe start to look forward to your times that you are coming here. My very best to you. You have found a caring place. Hank